I am new at this and feel lost. I am reaching out for some kind of support and help understand so much that I have not been able to understand about having to deal with having a brain injured adult daughter and how to still be able to be a mother and have some time for myself. I have a 29 year old daughter who suffers TBI from a automobile accident on 07/17/2007. Since her accident I have delt with so much unessessary finacial legal issues to get conservatoryship of my daughter because she is married with 2 yong children. Her husband had her admitted to a state long term nursing home, (Bordeaux Long Term Care.) My daughter was in that facility for 12 months. The experience she and I delt with is beyond what anyone will believe. I worked with her 7 days a week after she was capable to respond. I taught her her colors, shapes, she began reading, she was able to put large piece puzzles togther in 19 seconds along with many other achedemic skills during the time she was in the state facility. The doctors told me if she survived she would be a vegtable. after a year I ws able to get Medical Power of Attorney I removed her from the state facility and had her admitted to Vanderbilt University Medical Center in Nashville, TN. After a year in and out of court with her estranged husband I recieved conservatory ship and I brought he home. I often wander how far would she be now in her recovery if she had the 12 months wasted living in a bed and a wheel chair wearing diapers, on puree food in the state facility. Even though I worked with her cognatively. The care she recieved, the physical therapy she recieved was unexcaptable. Her speech theraptist was caught by a visitor abusing my daughter, holding his hand over her mouth with his knees in her chest. My daughter weighed 120 pounds and was unable to use her right side. The speech theraptist weighted at least 250 pounds. I was denied any information about the abuse because I was not considered the resposable party. Even after I reported to the state I got the same response. I have been working on tring to put that all behind me. My daughtr has shown termendous progress since she has been home. There isn't anything she can not do other than drive again. Her speech still needs a lot of improvement. I don't know if congnativly she will show any progress like she shown progress and regained her ability to do all that she is capable of doing.
I feel so lost! I have never met another parent that has a brain injuried adult child. My daughtr suffers from frontal lobe brain injury and left temporal. She recieved a baclenfen pump inplant and the doctors say they can not give me a medical explination why she has 100% use of her right arm and hand. I am convienced that she is alive bacause of my faith! she has had out patient and home health services with her Physical, occupational, and speech therapy. She wants so deaperatly to live on her own. With all the progress she has made she still struggles with so many of the changes a person who suffers from tramativ brain injuries. We were so close for a long time. The more she is capable of doing, the more she becomes aggressive and angry with me verbably. I hear MOM, MOM a hundred times a minute. Please !!!!! do take me ungrateful or misunderstand me. I love my daughter dearly! My daughter is convident she can move on with her life in some type of assistant living arrangement temporairly. Then she thinks she can raise her two boys on her own. I have put so much into getting her the right medical treatment, helping her to help herself with the tremendous progress she has made. I never thought about anything else and forgot I need time for myself. Now I live my life in a constant arguement. I am dealing with a daughter that is a little girl that is trying so hard to grow up again in a young woman body. I am the only person on the face of the earth she has. After her accident it is like the entire world died. And she and I survived. She was a daddy's girl. Her father nor one single friend she had before her accident or relative in my family or her fathers family has absolutely any contact with either of us. How do I change this situation? What can I do for my daughter to be happy? We attend church regular and love our church family. That is the only people we see other than one another until I recently got her enrolled in a social skills program from 9:00 a. till 12:00 pm Mon-Fri. Because of her loss of short term memory she can not remember what she does everyday by the time she gets home. during the time she is gone I have used this time to get past legal paper work done that has been left unatteded because my daughter wants my full attention at all times. Can anyone give me some advice as to what I am doing wrong? What can I do to feel less stress in our home between one another? I am fighting depression on a hourly basis, I love my daughter so much and if I could change places with her in life I would! I can't bear to think this is the way the rest of both our lives are going to be! Thank You, God Bless anyone that can comprehend what I am tying to express because I am having a very hard time expressing it.