March 2011 Blog Posts (19)

POEM

B as in Bullshit -By: C. Bukowski



B kind

B a good listener

B able to engage in physical combat

B a lover of classical music

B a tolerator of children

B an agnostic

B generous on the freeways of the world

B a good sleeper

B not fearful of death

B unable to beg

B able to love

B able to feel superior

B able to understand that too much education is a fart in the dark

B able to dislike poets and poetry

B able to… Continue

Added by mego on March 31, 2011 at 10:32am — 9 Comments

PIss on everyone

When i was younger i used to have this recurring dream....it was just me with a tshirt and a pair of jeans climing up this mountain.  the journey was difficult and full of challenges sometimes i would make it to the top in the dream, my shirt ripped and my body covered with open cuts, as i approached the edge of the moutain about a mile or so up from the ground, i looked down and see a multitude of people and i take a piss...this always woke me up.  For a long time this dream was a problem for… Continue

Added by Claudio on March 30, 2011 at 4:27pm — 4 Comments

Spring is my favorite time of year

Hello all. Been quite awhile since my last post, but thought (to myself) it’s time to write something that hopefully will make sense or help other survivors. Winter has gone and now it’s spring, so I started my walking trips since the weather is better. Before my injury I was a full-time runner, at least 5 to 8 miles a day but running is something I can’t do anymore because my balance is not good at all. Even walking can be a problem, which is why I carry a walking stick with me. I really…

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Added by Richard J on March 29, 2011 at 2:46pm — 7 Comments

I have so many questions that, I can't find answers to i.e. moodiness

Did anyone suffer from extremely low self esteem after your TBI.???

 

I have so many questions to ask...However, this one nags at me.  I am suffering from low self esteem and low self confidence. Is this one of those things I have to relearn again.?

 

 I am so bad at taking care of myself now.  When I wasn't before. I was extremely independent.

 

My damage is to both my frontal lobes building my self esteem back is important so, I can accomplish my…

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Added by Jackie on March 29, 2011 at 1:21am — 6 Comments

Cranial Sacral Therapy

When I first learned of this treatment I was skeptical at best. The idea that the scull is made up of many tiny bones fused together was not a new concept but to be able to manipulate and move them safely and without surgery was crazy talk to me. My first session was a free gift from a friend. I remember thinking it was a waste of time, but what did I have to loose?

            Nancy, my therapist, was unthreatening and didn’t seem surprised by my skeptical attitude. I remember her…

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Added by Inez on March 25, 2011 at 9:31am — 2 Comments

My profile history

My story is. When I was born the plsenta cord was around my neck and the knife to cut the cord with was missing from the tray. I ended up with brain damage from lack of oxygen. I have dislexea, a learning disabilty and before the training program, When I was a teenager,  I was all thumbs and left feet, wrote and saw things backwards at times, and very clumbsy. Now I can read (slowly) but correctly and my understanding rate is about 87% of what I read. Writing has also greatly inproved from…

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Added by Steve E on March 25, 2011 at 3:39am — No Comments

Everyone has a story.... I just learned of my TBI.. I don't quite understand these symptoms..

March 30, 2008 I was in a car accident with a drunk driver.  I haven't been the same since...Its a big horrible mess.. I smashed my head against the windshield with other injuries to my shoulder.. No doctor ever checked me for a TBI.. I just found out about a month and half ago.. Injury to the frontal lobes that has gotten worse with time..

 

However, I still need TBI therapy because, I'm so screwed up... I walked around for almost 3 years not knowing why I felt so weird,…

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Added by Jackie on March 23, 2011 at 11:24pm — 10 Comments

"Im not crazy but what are they missing?"

Im very distraught over this whole thing with my head. My cognitive testing shows deficits that are all centered around one focal point inside the left part of my brain and yet NOTHING is coming back on the MRI's. My grief counselor has been through my report with me multiple times where she tells me I am not crazy and yes there is something wrong. But it is killing me to not have a spot to point to or a report that states "yes her brain is damaged here". I have been told everything from the…

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Added by April on March 21, 2011 at 3:06pm — 4 Comments

circles of thought

having worked at so many different things...dishwasher, waiter, bartender, pre engineered fabric structure sales, technical support for sonnet ring technology, data networking account executive, cook, car wash attendant, grocery store stocker, customer service for wireless company, business consultant for manufacturing companies, male stripper, intern for sister cities, SPSS data compiler, international pricing analyst, forex trader and others i'm sure i forgot or maybe dont care to remember…

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Added by Claudio on March 21, 2011 at 4:00am — 2 Comments

Butterflies in My Stomach



I have been chosen to receive a scholarship from my school that will send me on an Art Students tour of New York. The trip is in 6 days. When I shared the news with my family they were so excited for me. I am excited too, but mostly I am scared to be there with strangers, in a strange place.  My fear is that I will have a seizure while on the trip and be vulnerable and scare my new friends from college who are supportive and fun but don’t really know the humanity that I live with.…

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Added by Inez on March 20, 2011 at 11:49am — No Comments

New to the world of support

I just wanted to introduce myself to this site.  I had a severe brain injury, coma for 2 weeks, damage to some critical nerve fibers that became somewhat functional after a 6 hour neurosurgery 6 months later.  All this happend after my 16th birthday and at 42 i am just now learning and seeking out help.  Divorced parents, moving to Colombia and being left alone, being a middle child, drugs and alcohol abuse, frequent visits to jail and constantly repeating mistakes have made me think i was… Continue

Added by Claudio on March 19, 2011 at 4:55pm — 5 Comments

Turning Nighmares Into Dreams

There is one day in my life; one I know I will never quite remember, but I also know I will never quite forget. It all happened in such a blur that I am not sure where to start, but I am not sure where to end. There is no clear line where it all began, and I see no clear line where it ends. All that I do know is that I have a story to tell, so maybe I should start from there.

I guess of all places to start, the best would be the day that shouldn’t have happened. I was sneaking off with a… Continue

Added by Melissa Fearer on March 12, 2011 at 6:38pm — 4 Comments

Starting Over: A Survivor's Guide

Hi there. I am a brain injury survivor and I work as a teacher, author, and motivational speaker.

I have written several books about my experiences in living with a traumatic brain injury that I sustained as a result of a motorcycle accident.

One of the books that I have written is entitled, "Starting…

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Added by Anthony Aquan-Assee on March 9, 2011 at 3:57am — 5 Comments

My soul is weary

I have always been religious and faithfully attended church each Sunday. I still have a strong appreciation for god and religion. It’s just that I struggle with attending a congregation that is not invested in my family. Perhaps it because I am afraid of their opinions and judgments so I don't share our problems with them. My accident was a catalyst event for my husband and children who suffer from obsessive-compulsive disorder.  Their obsessive behaviors and my physical pain prevent me from… Continue

Added by Inez on March 7, 2011 at 6:46am — 3 Comments

Today's Run.

http://connect.garmin.com:80/activity/embed/71441361

 

I had a dinner obligation so I had to cut it a little short. Trying to build myself to running 6 straight hours a day. Less than a month to go before the http://www.runtoremember.com/ starts. Blisters are back and becoming an issue. Need to figure out an answer to this. 

Added by David McGuire on March 5, 2011 at 9:06pm — No Comments

Dating and relationships

Just wondering peoples thoughts on how and when to speak about our symptoms with someone were interested in.  I met someone a month ago and she happens to be traveling to my country soon.  She wants me to join her for an entire week.  I think she's great and I look forward to it but I'm afraid to think of saying or doing the wrong thing, (being exposed).  I suppose I need to let them decide if the new me is someone they want to be around, etc.  I'd love to just be able to tell her but dont know… Continue

Added by TBI Guy on March 5, 2011 at 5:35pm — 9 Comments

Pain?



There are days that I wake up and feel as good as I did before TBI. On those days I forget that it ever happened and am happy to be alive.  But there are days that I wake up and feel as if the pressure in my scull will burst it open and as if an icepick is in my eye and large needles are stuck all the right side of my body. Occasionally I feel as if my right side is covered in fire ant that are biting me and crawling about at the sometime. This is how I exist a majority of the time. It…

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Added by Inez on March 4, 2011 at 7:30pm — 2 Comments

Damage Control...

Family vacations have always been something that Mark and I carefully planned, saved for and looked forward to. We would spend hours in front of the computer plotting our course for the perfect vacation. It didn't matter if we were traveling in our little trailer or running on the sandy beaches of California or the Gulf of Mexico, we always had an incredible time. This aspect of our life was something I never wanted to lose, even with the variable of Mark's traumatic brain injury. …



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Added by Paige Day on March 2, 2011 at 5:00pm — No Comments

How Can Anybody Else Understand Me when I Don't Even Understand Myself?

I am at a point in my recovery that has left me feeling very alone and confused.  Will things ever get "better"?  Will I ever be able to earn a paycheck?  Am I going to end up in financial ruin?

 

I have tons of questions but I have very few answers.

 

I feel the grip of isolation starting to take ahold of me.

 

I am still bitter about how my last employer treated me.  I am still bitter of how they continue to treat me in regards to Workers…

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Added by Tom on March 1, 2011 at 8:24am — 2 Comments

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