Do you live in the Seattle area and have an hour to spare in the next few days? I am taking a Human Computer Interaction course through Coursera.com. I need to observe and talk with 3 different…Continue
This is an FYI. This study is currently recruiting TBI survivors to be part of a focus group on September 14th. You will be paid $100 for 2 hours of your time. I am taking part in it myself. And…Continue
How about starting a new topic about that question? It does not really fall under the original post that this chain is replying to. I think you will get a better response if you start a new post. It is a good topic!!
I do not have time…"
"I'd like to see your states....I've been active in a few TBI forums and groups where most of the survivors share their personal difficulties with relationships....many of us here have stated they have great difficulty with relationships…"
"Everything has changed for me....severe TBI was in 1997 and I think learning to walk and talk at 27yrs of age was easier than all the crap I deal with now. I am a woman too. All of my hormones are totally out of whack and it is more…"
"Funny how conversations here will bubble up to the top from time to time. I wrote the original post/question over 3.5 years ago. I am happy to say that the problems I mentioned above did resolve over time.
@Papa - you know you are not a rarity…"
I have a good friend who has recently been going through increased seizure activity. The good news is that there are some new medications available now that really seem to offer some real help, I wish you the best and hope that your…"
"Caffeine works wonders for me also, symptom changes have been a constant thing for me. ?.some slow some quick, some come and go....just never really know.
I have been told there are milestones. 5 years, 10 years and 20 years. Im at 10 years…"
"Emerson asked: Have you experienced sudden changes years after a TBI? Emerson - Yes, I experienced a sudden positive change due to finding a FDA medicine which worked for me (NoDoz - contains caffeine - 21 years after a birth head…"
"So sorry.......I left out one digit.....
Please try this www.papas-travels.blogspot.com
I'd like to invite fellow TBI ers to visit and subscribe to my blog as it just might give some inspiration and…"
"Isn't it interesting how "brain holes" work? Good thing for you though Steffanie is that you are young and your brain will remap very well. It remaps for all of us but you young'uns grow brain tissue at a more rapid…"
I can really relate to this.....when I entered the military 40 years ago I was test tree times for IQ....different test each time....I loved them....I became friends with the guy giving the test.
I think he befriended me to observe me…"
"Wow!!! Compelling...., to say the least. My brain is too fatigued to respond more in-depth, right now. Nevertheless, I appreciate you posting this info. Makes total sense to me. And, your doing so has…"
I like your blog. This stuff about bad brain days is interesting. I'm a 'carer' for my partner. When he was still pretty much in ambulant post-traumatic amnesia, my car blew a tyre and he got out in the dark and fixed it with little help from me. Some time later, when he was much more alert, and in day time, another tyre blew. Again he fixed it with no problems. Last night, however, a tyre blew and he got the spare tyre out and put it on ... backwards, with the bolts in backwards as well. The car made an awful screeching but his injury slows his responses and he kept on driving and parked it carefully. This morning we went back to the car and found that the valve had been ripped out of the tyre but that nothing else was damaged. We were able to repair the first tyre (which a screw had penetrated) and to replace the valve. I don't have a brain injury but I still get days like the day you describe, however I must say that I am in awe of the one my partner appears to have had last night. It may be that he has been thinking very hard and working very hard to regain his linux computer skills and simply overdid it. He was quite upset at my curiosity and desire to pinpoint what could have happened. He said that he felt that anyone could have put a tyre on backwards. I admit that I probably could myself, but I know of no-one else and our car mechanic who has been in the business about 40 years says that he has never ever come across this kind of treatment of a tyre before. When I told my partner that he kind of accepted it. He had thought that I was chastising him, but I wasn't, but I could understand that it was pretty hard for him to accept. Maybe he felt the way I have felt on the odd occasion that I have made medication mistakes as a nurse; they are really hard to explain to oneself.
I'm sorry that I didn't join the chat. I think that my computer must keep me signed in even when I don't realize it. I'm still trying to figure out this website. I would love to chat sometime! I hope you had an awesome day!
Support groups are the hidden treasure of hope and resources from people who get it, they build communities, opportunities and help piece together a life trying to figure out just what has happened. #supportgroupsmatter is so important share…
"Talk to several legislators today, I told them I truly believe it is a oversight, and needs to be addressed. I do believe this will get resolved and it is a oversight, but my main job is to advocate for those groups providing such great…"